Social and economic aspects of treatment of the children with short bowel syndrome

Cover Page

Cite item


For many years, organizing and giving parenteral feeding, clinical manifestations of the underlying disease, use of costly drugs and complex expensive methods of examination and treatment have been associated with significant social and economic impact on the families with children suffering from short bowel syndrome. Allocation of resources among families with these children hasn’t been examined in Russia recently. Purpose. To estimate social and economic factors that influence the family with children affected by short bowel syndrome. Methods. Adult members of the families with the affected children born and living in Russia were questioned. 8 families were surveyed in 2014, 8 families – in 2019. Results. Complex social and economic aspects of treating children with short bowel syndrome in Russia were found during the conducted study. Comparative analysis of social and economic factors made it possible to estimate changes in ‘patient-social environment’ relationships within five years, briefly describe the scope of the work performed, delineate unsolved problems and discuss the measures needed to solve the problems. Conclusion. To solve social and economic problems associated with SBS, it is necessary to promote further development and expansion of the existing network of specialized centers dealing with treatment of these patients based on large pediatric hospitals in cities and federal districts of the Russian Federation. The Russian register of patients with short bowel syndrome composed by the Russian association of pediatric surgeons is a key link necessary to improve the quality of diagnostics and treatment of patients with SBS and to develop the state system of funding and provision of the patients with parenteral nutrition. A complex approach that requires participation of the state, federal clinics, charity institutions, creation of specialized centers, and local involvement of doctors will improve treatment outcomes of patients with SBS.

About the authors

R. R. Khasanov

Bashkir State Medical University; University of Heidelberg

Author for correspondence.

Rasul R. KHASANOV – Dr. Sci. (Med.), Professor, Department of Pediatric Surgery course at ICPE; Department of Pediatric Surgery University Hospital Mannheim, University of Heidelberg, Germany

Lenina St. 3, Ufa, Russia, 450015
Germany 68167 Mannheim, Theodor‑Kutzer‑Ufer 1‑3 

Russian Federation

A. A. Gumerov

Bashkir State Medical University


Aitbai A. GUMEROV – Head of Department of Pediatric Surgery course at ICPE

Lenina St. 3, Ufa, Russia, 450015

Russian Federation

L. M. Wessel

University of Heidelberg


Lucas M. WESSEL – Dr. Sci. (Med.), Professor Department of Pediatric Surgery University Hospital Mannheim

68167 Mannheim, Theodor‑Kutzer‑Ufer 1‑3



  1. Sulkowski J.P. and Minneci P. C. Management of short bowel syndrome. Pathophysiology. 2014;21(1):111–8
  2. Хасанов Р. Р., Гумеров А. А., Хагель К. И., Вессель Л. М. Современный взгляд на синдром короткой кишки у детей. Детская хирургия. 2016;20(1):40–44 doi: 10.18821/1560-9510-2016-20-1-40-44
  3. Аверьянова Ю. В., Степанов А. Э., Разумовский А. Ю., Поляев Ю. А., Макаров С. П., Васильев К. Г., Бологов А. А., Ашманов К. Ю., Мызин А. В., Исаева М. В., Бурмистров И. Ю., Кочкин В. С., Брюсов Г. П., Рогожин Д. В., Эктова А. П. Успешное лечение синдрома короткой кишки у ребёнка с обширной инфантильной гемангиомой брюшной полости. Детская хирургия. 2015;19(6):51–53
  4. Thompson J. S., Rochling F. A., Weseman R. A., Mercer D. F. Current management of short bowel syndrome. Curr. Probl. Surg. 2012;49(2):52–115
  5. Аверьянова Ю. В., Вессель Л. М., Ерпулёва Ю. В., Николаев В. В., Степанов А. Э., Чубарова А. И., Щукин В. В., Хасанов Р. Р. Федеральные клинические рекомендации «Лечение детей с синдромом короткой кишки». Российский вестник детской хирургии, анестезиологии и реаниматологии. 2014;4(4):92–108
  6. Ерпулева Ю. В., Чугунова О. Л., Вайнштейн Н. П. Современные технологии парентерального питания у новорожденных и детей раннего возраста. Российский вестник детской хирургии, анестезиологии и реаниматологии. 2016;6(3):87–94
  7. Чубарова А. И., Костомарова Е. А., Жихарева Н. С. Синдром короткой кишки и хронической кишечной недостаточности: оценка прогностических маркеров и эффективности реабилитации. Российский вестник детской хирургии, анестезиологии и реаниматологии. 2017;7(4):46–52
  8. Frongia G., Kessler M., Weih S., Nickkholgh A., Mehrabi A., Holland-Cunz S. Comparison of LILT and STEP procedures in children with short bowel syndrome – A systematic review of the literature. J. Pediatr. Surg. 2013;48(8):1794–805
  9. Ерпулева Ю. В., Лекманов А. У., Грибакин С. Г., Рыжов Е. А., Табакина Т. Е. Современные технологии энтерального питания у тяжелобольных детей. Российский вестник детской хирургии, анестезиологии и реаниматологии. 2014;4(1):80–87
  10. Weih S., Kessler M., Fonouni H. Current practice and future perspectives in the treatment of short bowel syndrome in children-a systematic review. Langenbecks Arch. Surg. 2012;397(7):1043–51
  11. Nucci A. M., Barksdale E. M., Beserock N. Interdisciplinary management of pediatric intestinal failure: A 10-year review of rehabilitation and transplantation. Journal of Gastrointestinal Surgery. 2008;12(3):429–35
  12. Spencer A. U., Kovacevich D., McKinney-Barnett M., Hair D., Canham J., Maksym C., Teitelbaum D. H. Pediatric shortbowel syndrome: the cost of comprehensive care. Am. J. Clin. Nutr. 2008;88(6):1552–9
  13. Colomb V. Economic aspects of paediatric home parenteral nutrition. Curr. Opin. Clin. Nutr. Metab. Care. 2000;3(3):237–9
  14. Аверьянова Ю. В., Разумовский А. Ю., Макаров С. П., Петров Д. А., Брюсов Г. П., Кочкин В. С., Степанов А. Э. Современная стратегия лечения детей с синдромом короткой кишки: 12-летний опыт. Анестезиология и реаниматология. 2018;6:67–74
  15. Розинов М. В., Чубарова А. И., Ерпулева Ю. В., Аверьянова Ю. В., Демура С. А., Косов Д. А. Федеральный регистр детей с синдромом короткой кишки. Российский вестник детской хирургии, анестезиологии и реаниматологии. 2017;7(4):38–45

Copyright (c) 2019 Khasanov R.R., Gumerov A.A., Wessel L.M.

Creative Commons License
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

This website uses cookies

You consent to our cookies if you continue to use our website.

About Cookies